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Date(s) - 08/04/2011
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Tweede dag van de workshop georganiseerd door het National Institute of Health van Amerika

‘This NIH workshop will bring together subject experts who will discuss multiple aspects of ME/CFS, including epidemiology, etiology, pathophysiology, diagnosis and treatment.  The workshop panelists will identify gaps in knowledge and opportunities for new biomedical research.’

Programma: https://www.infinityconferences.com/InfiniBase/Templates/157557/Agenda.htm

Ik weet niet of de tweede dag ook live te volgen is via:

http://videocast.nih.gov/

 

Preliminary Agenda

DAY 1 – THURSDAY, APRIL 7


7:00 – 8:00 a.m. REGISTRATION

8:00 – 8:05 a.m. WELCOME

James M. Anderson, M.D., Ph.D., Division of Program Coordination, Planning and Strategic Initiatives, National Institutes of Health (NIH)

8:05 – 8:15 a.m. OPENING REMARKS

Dennis Mangan, Ph.D., Office of Research on Women’s Health, NIH

PLENARY OVERVIEW

8:15 – 8:45 a.m. Anthony L. Komaroff, M.D., Harvard Medical School

The Clinical Presentation of Chronic Fatigue Syndrome

8:45 – 9:15 a.m. Leonard A. Jason, Ph.D., DePaul University

A Focus on Diagnostic Criteria and Case Definitions

INFECTIOUS DISEASES

NIH Moderator: Catherine Laughlin, Ph.D., National Institute of Allergy and Infectious Diseases, NIH

Co-Moderator: Harvey J. Alter, M.D., Department of Transfusion Medicine, Clinical Center, NIH

9:15 – 9:20 a.m. Session Overview

9:20 – 9:40 a.m. Ronald Glaser, Ph.D., The Ohio State University

Chronic Fatigue Syndrome and the Pathophysiologyof EBV Infection: Trying to Connect the Dots to Make Sense

9:40 – 10:00 a.m. John Chia, M.D., EVMED Research

The Pathogenic Role of Enteroviruses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

10:00 – 10:15 a.m. MORNING BREAK

10:15 – 10:35 a.m. Judy A. Mikovits, Ph.D., Whittemore Peterson Institute

XMRV and MLV-Related Viruses in Chronic Fatigue Syndrome

10:35 – 10:55 a.m. John M. Coffin, Ph.D., National Cancer Institute, NIH

Endogenous Retroviral Origin of XMRV and MLV-like Sequences

10:55 – 11:15 a.m. Summary and Panel Discussion

SYSTEMS BIOLOGY

NIH Moderator: Basil Eldadah, M.D., Ph.D., National Institute on Aging, NIH

Co-Moderator

11:15 – 11:20 a.m. Session Overview

11:20 – 11:40 a.m. Gordon Broderick, Ph.D., University of Alberta

Regulatory Imbalance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Network Biology Perspective

11:40 a.m. – 12:00 p.m. Mangalathu Rajeevan, Ph.D., Centers for Disease Control and Prevention

Genomic Studies of Chronic Fatigue Syndrome

12:00 – 12:20 p.m. Keith W. Kelley, Ph.D., University of Illinois at Urbana-Champaign

From Systemic Infection to Brain Inflammation

12:20 – 12:35 p.m. Summary and Panel Discussion

12:35 – 1:30 p.m. LUNCH

IMMUNOLOGY

NIH Moderator: Timothy A. Gondré -Lewis, Ph.D., National Institute of Allergy and Infectious Diseases, NIH

Co-Moderator: David M. Mosser, Ph.D., University of Maryland

1:30 – 1:35 p.m. Session Overview

1:35 – 1:55 p.m. Mary Ann Fletcher, Ph.D., University of Miami, Miller School of Medicine

Immunology of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and GWI

1:55 – 2:15 p.m. Benjamin Natelson, M.D., Albert Einstein College of Medicine

Chronic Fatigue Syndrome and Fibromyalgia Are Not Always the Same

2:15 – 2:30 p.m. Summary and Panel Discussion

2:30 – 2:40 p.m. Francis S. Collins, M.D., Ph.D., Director, National Institutes of Health (NIH)

NEUROLOGY

NIH Moderator: John Kusiak, Ph.D., National Institute of Dental and Craniofacial Research, NIH

Co-Moderator: Shaheen Lakhan, M.D., Ph.D., M.S., M.Ed., Global Neuroscience Initiative Foundation

2:40 – 2:45 p.m. Session Overview

2:45 – 3:05 p.m. Kathleen C. Light, Ph.D., University of Utah

Greater Post-Exercise Gene Expression of Adrenergic and Sensory Receptors and Cytokines in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome versus Multiple Sclerosis, Fibromyalgia, and Healthy Controls

3:05 – 3:20 p.m. AFTERNOON BREAK

3:20 – 3:40 p.m. Roy Freeman, M.D., Beth Israel Deaconess Medical Center, Harvard Medical School

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the Autonomic Nervous System

3:40 – 4:00 p.m. James Baraniuk, M.D., Georgetown University

Neuroimmunology of Chronic Fatigue Syndrome

4:00 – 4:15 p.m. Summary and Panel Discussion

EXERCISE PHYSIOLOGY AND ENERGY METABOLISM

NIH Moderator: Cheryl L. McDonald, M.D., National Heart, Lung, and Blood Institute, NIH

Co-Moderator: Kevin P. Davy, Ph.D., Virginia Polytechnic Institute and State University

4:15 – 4:20 p.m. Session Overview

4:20 – 4:40 p.m. Jane Kent-Braun, Ph.D., University of Massachusetts, Amherst

Muscle Function and Fatigue in Chronic Fatigue Syndrome

4:40 – 5:00 p.m. Christopher R. Snell, Ph.D., University of the Pacific/Pacific Fatigue Lab, Stockton, CA Cardiopulmonary Exercise Testing and the Assessment of Fatigue in CFS/ME

5:00 – 5:20 p.m. Peter C. Rowe, M.D., Johns Hopkins University School of Medicine

Orthostatic Intolerance in Chronic Fatigue Syndrome

5:20 – 5:45 p.m. Summary and Panel Discussion

DAY 2 – FRIDAY, APRIL 8

7:00 – 8:00 a.m. REGISTRATION

8:00 – 8:15 a.m. RECONVENE

DIAGNOSIS AND BIOMARKERS

NIH Moderator: Donald G. Blair, Ph.D., National Cancer Institute, NIH

Co-Moderator: Samir Khleif, M.D., National Cancer Institute, NIH

8:15 – 8:35 a.m. Nancy Klimas, M.D., University of Miami, Miller School of Medicine

Immune Based Biomarkers in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

8:35 – 8:55 a.m. Dane B. Cook, Ph.D., University of Wisconsin, Madison

Can Functional Neuroimaging Data Serve as a Biomarker for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

8:55 – 9:15 a.m. Michael Dean, Ph.D., National Cancer Institute, NIH

Identifying Genes and Genetic Risk Factors for Complex Diseases

9:15 – 9:35 a.m. Summary and Panel Discussion

TREATMENT

NIH Moderator: Christopher Mullins, Ph.D., National Institute of Diabetes and Digestive and Kidney Diseases, NIH

Co-Moderator: Susan Keay, M.D., Ph.D., University of Maryland School of Medicine; and Veterans Administration Maryland Health Care System

9:35 – 9:40 a.m. Session Overview

9:40 – 10:00 a.m. Fred Friedberg, Ph.D., State University of New York, Stony Brook

Self-Management in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the Meaning of “Improvement”

10:00 – 10:20 a.m. Italo Biaggioni, M.D., Vanderbilt University

Chronic Fatigue and Postural Tachycardia Syndromes

10:20 – 10:35 a.m. MORNING BREAK

10:35 – 10:55 a.m. Theoharis C. Theoharides, M.D., Ph.D., M.S., F.A.A.A.A.I., Tufts University School of Medicine Substance P-Stimulated TNF Secretion from Human Mast Cells Involves Fission and Translocation of Mitochondria with Extracellular DNA Release That Induces Auto-Inflammation, Processes Blocked by the Natural Flavonoid Luteolin

10:55 – 11:15 a.m. Lucinda Bateman, M.D., Fatigue Consultation Clinic, Salt Lake City

Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the Fatigue Consultation Clinic: The Art of Supportive Care Medicine

11:15 – 11:45 a.m. Summary and Panel Discussion

11:45 a.m. – 1:00 p.m. LUNCH

OPPORTUNITIES FOR COMMUNICATION (A Panel Discussion)

NIH Moderators: John T. Burklow and Marin P. Allen, Ph.D., Office of Communications and Public Liaison, NIH

1:00 – 1:05 p.m. Session Overview

1:05 – 1:15 p.m. K. Kimberly McCleary, CFIDS Association of America

Communicating with Research Stakeholders

1:15 – 1:25 p.m. Kenneth J. Friedman, Ph.D., Castleton State College

Elephants in the Room: Acknowledging Impediments to Chronic Fatigue Syndrome Research and Education

1:25 – 1:40 p.m. Patricia Fero, M.E.P.D., Wisconsin ME/CFS Association, Inc.

3 Generations: A View from Wisconsin

Mary M. Schweitzer, Ph.D., MCEAS, University of Pennsylvania

The Role for Internet in Communication

1:40 – 1:50 p.m. John T. Burklow, Office of Communications and Public Liaison, NIH

1:50 – 2:15 p.m. Summary and Panel Discussion

2:15 – 2:30 p.m. AFTERNOON BREAK

SUMMARY

NIH Moderator: Dennis Mangan, Ph.D., Office of Research on Women’s Health, NIH

Co-Moderator: Suzanne D. Vernon, Ph.D., CFIDS Association of America

2:30 – 4:45 p.m. All Speakers and Co-Moderators

• Summary of Each Session

• Responses by Department of Health and Human Services Federal Agencies

• Full Workshop Panel Discussion

4:45 – 5:00 p.m. CLOSING COMMENTS

Vivian W. Pinn, M.D., Office of Research on Women’s Health, NIH

Sponsored by

The Office of Research on Women’s Health,

National Institutes of Health (NIH)

In collaboration with

The Trans-NIH ME/CFS Research Working Group

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